1. section a: Agenda bua@AC




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6.References








References and suggested further reading:

  1. HATiP-HIV and AIDS Treatment in Practice, 29 June 2009. 138: 11p. www.aidsmap.com

  2. Portny, S. E. 2007. Project management for dummies. 2nd ed. Indianapolis, Indiana: Wiley Publishing.

  3. Shim K. 1997, Financial Management for Nonprofits

  4. Harvard Business Review. Summer 2009, OnPoint

  5. Dejong J. 2003, Making and Impact in HIV and AIDS

  6. Mutz J. 2006, Fundraising for Dummies

  7. Guthrie T and Hickey A. (Eds) 2006. Funding the fight: budgeting for HIV/AIDS in developing countries

  8. Swanepoel, H. 2006. Community development: breaking the cycle of poverty

  9. Riddle, J. 2002. Streetwise: managing a nonprofit

  10. Gauteng provincial government, 2007-2011. HIV and AIDS strategic plan for South Africa

  11. Gauteng provincial government, 2008. Strategic framework for capacity and organisation of the state

  12. Girma, M. 1997. Participatory strategic planning: the experience of USAID’s center for population, health and nutrition in designing its HIV/AIDS strategic objective

  13. SANAC, 2007-2011. HIV and AIDS and STI strategic plan for South Africa (NSP)

  14. UNAIDS, 2000. National AIDS programmes: a guide to monitoring and evaluation



6.1The AIDS Consortium Library Addresses:






7. SECTION C: Minutes of the June bua@AC session



Venue: Uncle Tom’s Hall. Soweto

Date: 02 June 2009

Time: 12h00 – 14h30

Chair: Gerard Payne

Lead facilitator: Joseph Dithako

Co-scribers: Tebogo Lesele & Dimpho Maruping


Background and disclaimer

bua is a Sotho word meaning, “talk”; it was commonly used at activists’ meetings in the apartheid struggle. When one was making a valid point and the supporters wanted to support his/her statement, they would just say “Bua”, which encouraged freedom of expression. These sessions also encouraged networking, comradeship and skills transfer. This epitomises the AC monthly meetings, hence – bua@AC.


The AIDS Consortium Bua sessions stand out as a pioneering initiative, bringing together over 100 HIV and AIDS and human rights activists monthly to discuss topical issues, hence a different theme each month. These have taken place for 16 years and are thus renowned in the sector.


The objectives of these Bua sessions include, but are not limited to:

  • Networking and community profiling platform for affiliates

  • Forum to promote discussion and debate on topical and controversial themes, driven by the affiliate body.

  • Skills transfer and sharing the latest HIV and AIDS information through researched information presented at each meeting in an information pack

  • Mechanism to share community news and events. A place to express views, which can influence strategy at local, provincial and national level.

  • Our mandate is therefore to stimulate debate and controversy, so that together we can eradicate confusing messages, myths and beliefs that continue to drive incidence, human rights violations and stigma and discrimination. All views are therefore heard, debated and captured.


Please note therefore, that

  • The views expressed in these minutes do not necessarily reflect those of The AIDS Consortium.

  • Please feel free to engage with the AC team for further clarity on any topical information.

  • Further information is available through our Resource Centre (library, distribution, and cyber café)


bua@AC Minutes

Theme: Youth and Multiple Concurrent Partnerships

Date: Tuesday, 02 June 2009

Venue: Uncle Tom’s Arts & Culture Centre (Soweto)


Chair: Gerard Payne

Lead Facilitator: Joseph Dithako

Scribe: Dimpho Maruping & Tebogo Lesele


  1. Opening and Welcoming

Gerard opened the meeting by welcoming everyone (new and old members). He asked participants to stand up, go meet someone they have never met before, greet and complement one another and encouraged them to network throughout the meeting.


  1. Tribute people who lost lives

Gerard invited Isaac Shakes Mafanela, one of our affiliates to from Youth In Action to light a candle, he then asked everyone to stand and pay tribute to people we’ve lost to HIV and AIDS and explained the reason why we light the candle is because the candle symbolises hope. All the same, he encouraged participants to stand and observe a moment of silence.


  1. Apologies and adoption of previous minutes


Apologies

Apologies were noted from the following affiliates:

Emma Hlophe – SOLOF

Vital Junction

Lorna Fisher – PUSH


Adoption of previous minutes

Quinton Mokoena - adopted

Priscilla Khauoe - seconded


  1. Feedback from previous theme

The floor was opened to everyone to share what they did with information obtained at the previous meeting.

Priscilla – PUSH

  • With the information obtained at the previous bua@AC, PUSH educated Home Based Carers by sharing with them about TB, especially about precautions they need to take in order to protect themselves from TB.

  • Our organisation has workshops on educating people about TB and how it is transmitted, we also teach them how to cough especially in crowded places such as taxis, buses and trains.




  1. Heroes Campaign

Gerard introduced and welcomed Rhulani on the stage to talk about the Heroes Campaign.

The “HEROES campaign” is an AIDS Consortium initiative responding to the negative perception of classifying HIV and AIDS as an outcome of sexual excess and low moral character. This perception discourages disclosure and fuels stigma and discrimination.

This campaign aims to challenge stigma and discrimination on the basis of one’s HIV status by encouraging discussion and disclosure. Through sharing their personal journeys, prominent people or people in prominent positions within society, living openly with HIV are the chosen advocates/faces of this campaign. Through the use of media such as posters, videos and audio clips, the ‘HERO’ is profiled as they share their journey in dealing with the outcome of their disclosure. This is meant to:

  • Challenge stigma and discrimination on the basis of one’s HIV status

  • Open channels of communication and encourage testing

  • Promote leadership by HIV positive individuals (Greater Involvement of People Living with HIV)

  • Encourage discussions around stigma and discrimination.

This campaign is a call to prominent people to ‘come out’ and normalise HIV, hence the campaign pay off line – HIV…share your journey.

Rhulani shared the background about the Heroes Campaign before introducing the Hero for the month of June – Tender Mavundla: a musician and one of the finalists from a popular music show “Idols”. She’s been living with HIV for more than 8 years and has been on treatment for almost 4 years. Her courage and commitment to making a contribution in the fight against HIV and AIDS is what pushed this determined young Diva to use this platform to raise HIV awareness in millions of audiences.

Rhulani then played a video clip of Tender Mavundla. She subsequently opened the floor for everyone to interact with the Hero through a question and answer session.


Questions and answers session with the June Heroine Tender Mavundla


Questions

Responses

You said you had an emotional scar – I know how I deal with mine, and I want to know how you deal with yours

To heal my scars I sing praise songs because nobody knows what you are going through, not your mother, not your boyfriend but only God knows what you are going through.

How old were you when you found out about your status?

I was 19 years old when I found out I was HIV positive, I was terrified of telling my boyfriend about a condom, back then a condom was another story , I was more worried about taking a baby home than HIV.

What is the role that you think men can play in changing the situation?

Men should stop pretending that HIV is nothing. As a woman, when you have an STI and you go to the doctor and the doctor treats you and ask you to bring your boyfriend they don’t come because they know you are not the only one. Men need to be in the relationship with us.

What is your source of strength?

I gather my strength from people around me; my mother is my source of strength and my community, the very same community that was laughing at me. All you have to do is to inform yourself about the things you don’t know.

I want to know; what was your worst experience? and the first impression after you were diagnosed

Stigma and discrimination from my community was my worst experience; the minute I got off the bus from Jo’burg, my community played doctor; they pointed fingers at me and concluded what was wrong with me. When I was diagnosed, I didn’t know what HIV was and so it was difficult for me to have any kind of reaction.

What was your first goal when you found out you were positive?


I didn’t have a goal because I didn’t know what HIV was, I didn’t care and I didn’t even cry because I didn’t know what it was

Did you blame someone or did you spread HIV without knowing?

I was in denial for years. I had Opportunistic Infections because I was wearing a dress of denial. Umzala (HIV) took over my body, the very same body I was flaunting and proud of.

If you don’t want to talk to people about HIV, HIV will talk to people for you because you start losing weight and you hair start falling off.

Do you have a child? If not, are you planning to have one in future?

Before I went to Idols I was pregnant and gave birth to a baby girl and I called her Destiny because I thought me giving birth to her was going to be the end of me. My baby came out six month prematurely and tested negative because I was on the PMTCT programme, and nine days later she passed away. At the moment my viral load is undetectable, my CD4 count is beyond 600 and going for 700 and I’m very happy, with the man that I have right now, and yes, we are planning on having a baby.




  1. The impact of MCP (Multiple Concurrent Partnerships) in young people – Dialogue


Dialogues

Gerard called Joseph on stage to lead the meeting into discussion and debate. We are going to talk about the impact MCP has on young people and also discuss possible solutions for and with young and old people.

Joseph asked people sing a song that young people relate to as an ice breaker before people went to their respective groups. 45 minutes was allocated for the discussions.


Feedback from the discussions:

Joseph asked for four young people from the different groups to give feedback.


Aphiwe from Reashoma

  • Blame was one of the factors that stood out in our discussion

  • Peer pressure also came out as one of the factors that influence MCP. Personally, I don’t think there is such a thing as peer pressure because it is up to the person what they want in life. Young people are very exposed to a lot of things like clubs, alcohol and drugs but it’s up to an individual to make a decision whether or not to give into peer pressure.


Busi from Nanga Vutshilo

  • Parents should communicate with their children and parents also need to stop comparing their children with others’ children

  • As young people, we have a lot of partners and we are blinded by it, you can be a faithful partner but at the end of the day you don’t know what your partner is up to, who they are sleeping with and when.

  • Young people need to take care of themselves, having multiple partners goes to show that we do not care about ourselves and our bodies.


Mokgethwa

  • What I have learned today makes me proud to be the person that I am today because it gives us hope that there is a light at the end of the tunnel.

  • As young people, we must stop undermining ourselves and start believing in ourselves, take pride in ourselves and our bodies.

  • If we as young men practice safe sex we can reduce the rate of HIV infection and teenage pregnancy and girls also need to learn to say “NO” and stand their ground.


Lwambo

  • Lack of parental control. Our parents do not advise us in a right manner, they need to love and support us. Our parents need to talk to us, not talk at us.

  • Parents must start advising their kids at an early stage because it’s not easy to stop when you are already been exposed to this life (engaging in sex).


Gerard asked all the young people who were presenting to come back to the stage and collect their gifts (T-shirts), he also mentioned that people like coming to these meetings but when they go back to their communities they do not talk about these issues. He encouraged people to continue to dialogue.


  • Gerard then invited Joan Wessels and Jady Grasland on stage.


Jady’s Story

Joan Wessels is a nurse and an HIV counselor by profession. Jady is one of her patients and was born HIV positive and she is orphaned as a result of HIV/AIDS. Jady was put in the spotlight when she was very young by Sowetan newspaper (Joan showed the audience Jady’s picture when she had warts). When Jady was 8 years old, Joan took her to the mall and people could not stop staring at her as these warts were all over her body. When they came back Jady was really upset as she was crying, she asked Joan to pray with her. Joan asked her children to join hands and pray together with Jady, two weeks later Joan went to see Jady and she was well and the warts were all gone and when Joan asked if Jady had seen the warts fall off the or bed since they are all gone, Jady said “No, remember you prayed for me”. Joan had suggested to Dr. Marlon McKay to burn the warts, they could not because Jady’s CD4 count was 37 and they were afraid she would die. Joan also mentioned that Jady has stopped her medication without her doctor being aware. Jady practiced her faith and believing that God healed her, they never took another test to see whether or not Jady is still HIV positive. She went to the doctor not so long ago for her check up and the doctor said her CD4 count is 3000. Joan wrote a book, not about Jady but about her own life as she is also an orphan, she was rejected as a child - the title of her book is “Rejected at Birth”.

Following Joan’s presentation Gerard then explained that The AIDS Consortium encourages people to take their treatment faithfully because HIV is a chronically manageable condition and treatment helps in this regard. He mentioned that there has not been any scientific proof that there is a cure for HIV. He reiterated the importance of staying on treatment once initiated on it.

Presentation – Soweto Care System

  • Gerard introduced Lucky Ngwenya and Frans and that they have a brief presentation about their new project called “The Soweto Care System” and if people are interested to be part of it they can forward their contact details to Nonzolo as further trainings will be held at The AIDS Consortium.

The Soweto Care System Presentation is available at The AIDS Consortium Library.

  1. Announcements

There were no announcements from the floor

Staff announcements

  • Mpho Putu, AC Training Manager has resigned from The AC, therefore there is a vacancy a Training Manager. Gerard urged those who qualify or those who might know of someone who qualifies, to please encourage them to apply.

  1. Vote of thanks

  • Gerard thanked everyone for taking their time to attend the meeting and also encouraged everyone to complete their evaluation forms as it would serve as their ticket to receive a meal.

Meeting adjourned with lunch at 15h20

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